United Cerebral Palsy of Middle Tennessee

 

1200 9th Avenue North, Suite 110

Nashville, TN  37208

Phone 615-242-4091

Fax 615-242-3582

Request@ucpnashville.org

 

 

Equipment Exchange

 

Geographic Area Served: Statewide, plus limited services to South Central Kentucky and some international services

Number of People Served Annually: 793

Demographic Characteristics: Individuals with disabilities of all types; all ages

 

Program Description: The UCP Durable Medical and Adaptive Equipment Exchange Program enables individuals with disabilities and their families to become self-sufficient through the provision of durable medical and adaptive equipment. 

 

Through this Exchange Program, equipment donated to UCP is collected, modified, and/or repaired.  UCP, in turn, places the equipment with individuals who need the equipment but cannot afford it or cannot acquire it through insurance.  Furthermore, individuals to whom UCP has provided equipment frequently return the equipment to UCP when it is no longer needed so it again can be placed with another individual. 

The Exchange program is available to anyone -  with any type of mobility disability  -  regardless of diagnosis.  There is no charge to families for services in this program. 

 

UCP has a reciprocal arrangement with two international relief organizations. Excess equipment that cannot be rapidly distributed is passed on to these organizations.

 

Home Access/Wheelchair Ramp Program

 

Geographic Area Served: Statewide

Number of People Served Annually: 226

Demographic Characteristics: Low to extremely low income families that have a family member with a severe/long term disability requiring use of a wheelchair; all ages

 

Program Description: The Home Access program was created when United Cerebral Palsy began to hear stories about hundreds of people with disabilities – wheelchair users - who could not get in an out of their homes because of steps and other barriers.  Some people had been isolated in their homes for years.  Others were getting in and out only because someone was lifting them – which is dangerous for both the person being lifted and the person doing the lifting.

 

Because of the lack of a modification so simple, but so important, people could not access transportation.  They could not get jobs, visit friends or go shopping.  In some cases they had to use an ambulance service just for transportation to doctor’s visits.

 

United Cerebral Palsy now builds ramps and coordinates state-wide construction of wheelchair ramps for individuals with mobility disabilities whose homes are without proper accessibility. Working in conjunction with collaborating agencies, volunteers from churches, civic clubs, and other area groups, UCP spearheads the construction of over 200 wheelchair ramps annually. The average length of a ramp constructed under the program is 27.5 feet.Because of the intense mobilization of volunteers, the average cost of a wheelchair ramp in the program is only $768, compared to a cost of over $970 for an 8 ft. portable ramp.   UCP and our partner agencies in the program have constructed over 1065 ramps since the program was initiated.

 

 

Educational Travel Program

 

Geographic Area Served: Statewide

Number of People Served Annually: 126

Demographic Characteristics: Persons with all types of disabilities and their family members or caregivers; all ages

 

Program Description: The Educational Travel Fund allows individuals with disabilities of all types throughout the state of Tennessee, and their parents or caregivers to attend conferences and educational activities related to their particular disability. The program also funds speakers and facilitators for similar projects in Tennessee.  The program is funded by the Tennessee Council on Developmental Disabilities.

 

Disability Housing Assistance Program

 

Geographic Area Served: Statewide

Number of People Served Annually: Projected 2007-08:  188

Demographic Characteristics: Low and extremely low income individuals with severe functional disabilities in rural counties of Tennessee; all ages

 

Program Description: This is a new program starting in August 2007. The Tennessee Disability Housing Assistance Program is a project of the Tennessee Housing Trust Fund.  The program is administered by United Cerebral Palsy of Middle Tennessee and is funded by Tennessee Housing Development Agency. The program provides housing-related grants and low-cost disability-related home modifications and repairs specific to the needs of low income rural Tennesseans with severe disabilities.  The mission of the program is to ensure that Tennessee citizens with disabilities have access equal to all citizens, to safe, sound homes and opportunities to live in their communities. A total of $560,748 is available for distribution in grants prior to June 30, 2009.  This will be accomplished through a network of partner agencies established by UCP across the state of Tennessee.

 

Family Support

 

Geographic Area Served: UCP has the state contract for Rutherford County

Number of People Served Annually: 176

Demographic Characteristics: Persons with severe functional disabilities in Rutherford County Tennessee; all ages

 

Program Description: Family Support is a statewide service to individuals with disabilities supplied by the state of Tennessee through the Tennessee Division of Mental Retardation. The program consists of a statwide fund that is distributed equitibly throughout the state through locally based agencies in each community. Services can include but are not limited to: Respite care, day care services, home modifications, equipment, supplies, personal assistance, transportation, homemaker services, housing costs, health-related needs, nursing and counseling. The average distribution statewide is $1,000 - $1,500. The maximum distribution for any individual is $4,000.

 

Sports and Recreation Program

 

Geographic Area Served:

Number of People Served Annually: 524

Demographic Characteristics: Individuals with disabilities of all types, with primary focus on motor-related disabilities; all ages. This is an inclusive sports program, so non-disabled volunteers participate regularly.  For service calculations, only individuals with disabilities are counted in the number above.

 

Program Description: United Cerebral Palsy's Sports and Recreation Program is a year round activity for people with disabilities and their families which takes place every Wednesday evening and during specially designated weekends.  Participation in these activities affords consumers an opportunity to engage in activities which have both physical and social interaction benefits. Among regular activities offered include bowling, wheelchair basketball, board games,  and movie nights. Special activites include the UCP annual family picnic and social at Centennial Park and "Fans on Wheels" activities at area sporting venues. Children may participate on the UCP sponsored Challenger League Baseball team.

 

Information and Referral

 

Geographic Area Served: Generally Middle Tennessee, plus some services to persons from other parts of the state and individuals planning to move to Tennessee from other states

Number of People Served Annually: 1858

Demographic Characteristics: All disabilities; all ages

 

Program Description: United Cerebral Palsy serves as the doorway through which many families learn about the condition known as cerebral palsy, and also about community services available to individuals with many types of physical disabilities. A large number of requests pertain to information about unmet needs of the constituency.  These include requests for help in funding assistive technology, personal and attendant care services, respite care, prescription pharmaceuticals, and other items not covered under TennCare and private insurance. A large percentage of requests for information relate to cerebral palsy.  The remaining calls and e-mails  have to do with a more broad-based area of inquiry related to disabilities in general.

 

Barry Dean Fulton and other Special Needs Funds

 

Geographic Area Served: Middle Tennessee

Number of People Served Annually: 14

Demographic Characteristics: individuals with cerebral palsy and closely related disabilities; all ages

 

Program Description: The purpose of the Barry Dean Fulton Special Needs Fund is to provide support for individuals with cerebral palsy and closely related disabilities through the provision of financial assistance for the purchase or repair of adaptive equipment, and other select needs as asertained by the volunteer oversight committee. Funding for the program is derived from a variety of community fundraising initiatives. Over the past 10 years, UCP has distributed over $150,000 in direct financial assistance to 389 persons with cerebral palsy and similar conditions. The maximum amount allowable per person from the fund in any given year is $1000.  The average amount per distribution is $483.  UCP also distributes funds from the Burch Family Trust and the UCPA Bellows Trust through this initiative.

 

Funds may also be used for emergency aid to families when no other source of immediate aid can be identified.  Because of the small amount of money in these funds, this aid is limited to extreme emergency situations.

 

Public Policy

 

Geographic Area Served: Statewide

Number of People Served Annually: Not applicable

Demographic Characteristics: All disabilities; all ages

 

Program Description: UCP has entered into a public policy alliance, the purpose of which is to identify, articulate, and promote sound and effective public policy modeled on the successful collaboration of UCPA and the ARC.  This alliance advocates in the best interest of citizens with disabilities in the state of Tennessee. Current focus is on development of services for persons with Developmental Disabilities in Tennessee.

 

Educational Video and Photography

 

Program Description: UCP produces educational video programming on issues affecting individuals with disabilities.  Among these include investigative reports on Inclusive Education, Transportation, Fair Housing, Adoption of Special Needs Children, ADA Accommodations, Tenessee State Title 33, Emergency Preparedness for Persons with Disabilities, and the Supreme Court’s Olmstead Decision.  The video training on Voting Accessibility developed in conjunction with Tennessee Disability Law and Advocacy Center is used in all Tennessee Counties for training of Pollworkers and Election Officials. The video training for the Tennessee Family Support Program devloped in conjunction with the Tennessee Council on Developmental Disabilities is used statewide in the ongoing development of the Tennessee Family Support Program.

 

Commissioned art and photography developed by UCP has appeared in numerous publications. UCP developed a Tennessee Legacy Watercolor given as a commemorative gift for attendees at the National Council of State Legislators Convention held in Nashville, TN.

 

Holiday Boxes

 

Geographic Area Served: Middle Tennessee

Number of People Served Annually: 60

Demographic Characteristics: Extremely low income families including a family member with a severe disability; all ages

 

Program Description: Each year volunteers gather and distribute Holiday boxes for families in extreme poverty whose resources and family supports are severely limited.  UCP volunteers pack these boxes with essentials such as staple, nonperishable food items, warm clothing, bath and bedding items. They also include Holiday and New Year's messages, cards and drawings from children, and many other small gifts. All of the items in the Holiday Boxes are new items, purchased or handmade by volunteers especially for the families they are helping through the program.